Your patient portal provides you with on-line access to a range of information and services. You do not need to have a patient portal account to receive services from us, but it does provide additional choice and opportunities for engaging with us and involving your family and carers in your care.
We will of course advise you of your appointments but we believe we should be able to do more. For a start you should be able to see any appointments that have been made, choose to receive text reminders to the phone of your choice or email reminders to the email account of your choice (and maybe even choose what the message says and how far in advance you get it). In time we expect you to be able to reply to the reminder to cancel the appointment, and for you to be able to book your appointment for a date and time to suit you.
You are entitled to a copy of your care plan and should routinely receive a copy. Initially we will publish a copy of your care plan here. Over time though we’d really like your care plan, indeed your entire care record, to be a shared document with us each contributing to it.
You would expect the team involved in your care to all have access to your care record but the NHS and the care system as a whole is made up of many agencies and organisations. Sharing your personal information with other people can be a tricky balancing act because we all have different views and personal circumstances. This facility gives you the choice, you tell us how you would like your information shared and with whom. You can of course change your mind at any time. We also think you have a right to know who has looked at your record and why, so we'll tell you.
Naturally we want to hear what you think about our services and love to get feedback, positive or negative, to help us improve what we do and how we do it. We will conduct voluntary surveys and polls to gather structured feedback but you are also welcome to feed back to us at any time about your experience of working with our staff. We also value your thoughts on how we can make our feedback system itself more effective!
This section of the site will be where you can subscribe to text or email reminders for events such as appointment bookings or notifications that something has been updated. It will be a virtual notice board where you can put your name down for various activities like signing up for a drama club or perhaps to putting your name down to join a group ramble along the Pilgrims Way. The list will grow over time including formal services and social events and this page might well become one of the main reasons you visit the site.
One of the things people have told us in the past is that they would like more access to their teams and individuals between appointments and this is going to be one of the ways we can facilitate that increased access. We will also publish a number of general contacts and your own assigned contacts such as your care coordinator. You can add your own contacts (such as your carer perhaps) and decide for yourself what they can see and do on your behalf.
In the day-to-day course of events we will sometimes write to other colleagues or organisations such as your GP regarding your care - for example, it might be to explain to your GP why we have changed your medication. When we do so, you will receive a copy of that correspondence here. In time this page will include all correspondence with you or about you.
At those times when you become very ill and need to be admitted we need to be sure arrangements for child-care, looking after a pet, caring for an elderly relative, and any other matters where people rely on you are understood. Clearly, having up-to-date information is necessary and this feature will allow you to update your “advanced instructions” as often as needed to ensure your care team is well informed with the latest information at your time of need.
We know for some people it might be preferable to meet with us using video-conferencing from the comfort and convenience of your own home. Where this is practical and desirable we'd like to be able to offer this choice.
Winner of the 2015 National Care Coordination Association Good Practice Awards for ‘Promoting Service User Involvement in Delivering Effective Care Processes’.
Judges comments, “I was absolutely blown away by this entry, it is the very essence of what we all should be trying to achieve, this allows service users to be involved in their own care in a completely new way, it embraces the opportunities that technology allows us. It puts services users in control of their own care; it challenges the received wisdom around patient’s records. As someone who teaches risk assessment and management and care planning, the level of collaboration it allows, plus the flexibility which it is looking to achieve is superb. I look at this and just see everyone as winners, the way this can be used in risk management is revolutionary. Absolutely fantastic work.”